Brasília – A public hearing held in the Brazilian Senate on October 3 supported the creation of a National Awareness Month for Rett syndrome, a rare genetic neurological disorder that mainly affects girls.
Participants highlighted the importance of early diagnosis, access to therapies, and continued support for patients and families. They also called for the inclusion of Rett syndrome in national public health policies, increased investment in research, and coordination between federal, state, and municipal health authorities to expand access to care and awareness campaigns.
Source: Senado Federal
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