Brasília – During the Talks Online event organized by Futuro da Saúde, a new study presented key data on the situation of patients with paroxysmal nocturnal hemoglobinuria (HPN) in Brazil. The findings reveal persistent inequities in diagnosis and treatment, with women waiting an average of 20 months and men around five months for a confirmed diagnosis.

Between 2018 and 2022, 464 patients received treatment through the public health system, most of them women aged 30 to 39. Despite advances in specialized care, regional disparities persist, forcing many patients to travel long distances to access treatment centers.

The report underscores the importance of expanding diagnostic capacity, improving referral pathways, and ensuring integrated psychosocial support for patients living with rare hematologic diseases.

Source: Futuro da Saúde